our daily sunlight 'butterflly'
Lately I have taken to using the expression, "I am so behind I can see the back of my head." Of course, depending on the company and my general state of frustration, the language of that sentiment may be slightly altered,* but you get the general idea. I have a serious case of overwork complicated by medical drag-ass (note: that may not be the technical dianosis--but basically I exist in a constant state of jet-lag, even though my last overseas flight was in the late 80s). The boys and I sing One Day at a Time, Sweet Jesus a lot. I feel my calendar judges me.
Long story short, expect delays.
One thing that I have been keeping up with well is the lads' "miracle journal." This is a notebook we have decided to start for a summer vacation project, and it gives a soft landing to the end of the day for Toe and Roo. At bedtime we cuddle on the couch and they each tell me one thing from the day that they feel was a miracle. Two little entries per night, Mon-Saturday (because Sunday is one big miracle, it would be too hard to choose on that day), for a weekly dozen moments of awe at God's good gifts.
Most miracles are pretty small, but big in the boys' eyes, just as it should be. Entries include things like our daily sunshine "butterfly" which mysteriously visits our ceiling in the southwest corner of the house every evening at 6:30--for the life of us we can't figure out what is refracting its shape through sun-filled window, but that's how miracles sometimes are: inexplicable.
Other "miracles" from the minds of Toe and Roo:
"Ants"
"The Dollar Store"
"How the grape juice turned into popsicles"
"DVD players"
"free tickets to Pump-it-Up!"
"blankets"
"my cough is gone"
"Uncle Jimbo"
"how popcorn works"
"rocks"
"hugs"
"Christmas"
"dog friends"
"the green outside"
"messages from Reebs"
"the color pink"
"breakfast"
"that oceans are big"
"different colors of skin"
"vacations"
Today I will add my own entry, which is final approval for a very, very large grant to finance the implementation of an autism therapy plan of my own design for Tovi. The grant will not be in place until sometime in late July, but will finally allow for such things as equine and nature therapy (to alleviate ASD and NDD symptoms), home modifications such as new locking mechanisms for doors and windows, an adaptive bicycle, sensory integration equipment (special lighting and furnishings to decrease harsh sensory input), an autism serivce dog (though not this year), electronic tracking services for Toe, and an iPad with communications apps such as iCommunicate and Tom the Talking Cat. Also there will be paid ABA therapy implemented by both Hub and me, and many other things as they come up in toe's list of developmentl needs. Toe has had the possiblility of benefitting from all these things for years now, but no access to them, and so I am very grateful that in this regard God finally said, "yes."
Hope your day is miraculous too!
*despite my frequent refernces to whore, I do still try to keep the language of this blog somewhat "family-friendly"
Long story short, expect delays.
One thing that I have been keeping up with well is the lads' "miracle journal." This is a notebook we have decided to start for a summer vacation project, and it gives a soft landing to the end of the day for Toe and Roo. At bedtime we cuddle on the couch and they each tell me one thing from the day that they feel was a miracle. Two little entries per night, Mon-Saturday (because Sunday is one big miracle, it would be too hard to choose on that day), for a weekly dozen moments of awe at God's good gifts.
Most miracles are pretty small, but big in the boys' eyes, just as it should be. Entries include things like our daily sunshine "butterfly" which mysteriously visits our ceiling in the southwest corner of the house every evening at 6:30--for the life of us we can't figure out what is refracting its shape through sun-filled window, but that's how miracles sometimes are: inexplicable.
Other "miracles" from the minds of Toe and Roo:
"Ants"
"The Dollar Store"
"How the grape juice turned into popsicles"
"DVD players"
"free tickets to Pump-it-Up!"
"blankets"
"my cough is gone"
"Uncle Jimbo"
"how popcorn works"
"rocks"
"hugs"
"Christmas"
"dog friends"
"the green outside"
"messages from Reebs"
"the color pink"
"breakfast"
"that oceans are big"
"different colors of skin"
"vacations"
Today I will add my own entry, which is final approval for a very, very large grant to finance the implementation of an autism therapy plan of my own design for Tovi. The grant will not be in place until sometime in late July, but will finally allow for such things as equine and nature therapy (to alleviate ASD and NDD symptoms), home modifications such as new locking mechanisms for doors and windows, an adaptive bicycle, sensory integration equipment (special lighting and furnishings to decrease harsh sensory input), an autism serivce dog (though not this year), electronic tracking services for Toe, and an iPad with communications apps such as iCommunicate and Tom the Talking Cat. Also there will be paid ABA therapy implemented by both Hub and me, and many other things as they come up in toe's list of developmentl needs. Toe has had the possiblility of benefitting from all these things for years now, but no access to them, and so I am very grateful that in this regard God finally said, "yes."
Hope your day is miraculous too!
*despite my frequent refernces to whore, I do still try to keep the language of this blog somewhat "family-friendly"
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